Owen and Emily took Jaxson to the eye doctor the following Monday. After several doctor's visits and exams, they found out that their child had what they feared: eye cancer.
The tumor is a size D on a scale of A to E. It will never completely disappear. For the rest of his life, Jaxson will need to be monitored to make sure the tumor doesn't damage his vision, Owen said. He will never be able to see tunnel vision in that eye, but he can see peripheral.
The worst case scenario is that Jaxson loses his eye, doctors said. Chemotherapy is the only way to save it.
The good news
Jaxson is only about a quarter of the way through chemotherapy, but the family has already received good news.
"The tumor has shrunk significantly and we aren't even halfway through chemotherapy yet!" Emily shared recently on Facebook. The bottom picture is the tumor's size when Jaxson was diagnosed, and the top photo shows what it looks like now. It shrunk down to one-third of its original size.
For anyone who hasn't seen the image, the bottom picture was the tumour when Jaxson was diagnosed, and the...
Emily admitted that this journey has been a frustrating experience. In March 2017, they found out that his lungs and kidneys weren't functioning as well as they should.
On top of that, they travel five hours round trip for appointments and treatments. They have audiology appointments, blood tests and see doctors at three different hospitals. With all the traveling, medical expenses and major time commitment, Owen and Emily said it is hard to live a normal life. They started a Go Fund Me page to help cover the treatment costs.
"After the chemo he's very sick for a couple of days," Owen said. "He's just not his usual self and doesn't want to do anything, but after a few days he gets back to his usual happy self. It's going insanely well and we're so proud of him."
It's not all doom and gloom when you have Chemo! Messy play at it's best 😍
The couple warns other parents to know the glow. This white reflection can be detected by taking a flash photograph of your child and looking for a glow in one or both eyes. You can also ask your pediatrician to do a red-reflex screening.